Alzheimer’s is not just about forgetting people or things. Alzheimer’s Disease causes a complete physical deterioration of your whole self to the point where your body stops working. Words cannot describe this transformation. My mother had Alzheimer’s. Every time I saw her I just couldn’t believe what was happening to her. It was heartbreaking.
My mom loved fashion; coming from a family of tailors, she appreciated and loved beautiful clothes and she sewed the most beautiful clothes. She was a great cook and she loved to read; she read two newspapers every day. She had a very polished gracious way about herself. Alzheimer’s took all of that away and more. I cared for her. Tried to keep her appearance, dress her the way she would have liked and make the foods that she loved to eat. As her Alzheimer’s progressed it seemed that none of that mattered although I continued to care for her in the same manner.
Caregivers give and then they give some more and then some more and even more and more. The role has no boundaries and even with outside help, caregivers still have full caring responsibility. The stress is overwhelming, the emotional drain can be debilitating and living in a constant state of worry eventually results in health issues.
I became active in the Alzheimer’s Association because as a caregiver I became depressed, neglectful of myself and developed health issues. At that time there wasn’t much information available. Caregiving can be very lonely and without information and some sort of outreach; it is a very sad and scary road. Support services are so important; they help caregivers who are often so consumed with taking care of others they neglect to care for themselves. Support services provide information, counseling, and programs so that caregivers can remain healthy and strong as they face their daily challenges.
Alzheimer's is not just my cause it is our cause. In some way it will affect each and every one of us, we need to find a cure.
Read here about 2018 ALZHEIMER’S DISEASE FACTS AND FIGURES
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